Pfeiffer Syndrome: Behind The Rare Genetic Disorder That Killed Prince's Infant Son | Essence
Pfeiffer Syndrome: Behind The Rare Genetic Disorder That Killed Princ…
Mar 20, 2017
essence.com
Everything You Should Know About Pfeiffer Syndrome
Everything You Should Know About Pfeiffer Syndrome
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health.com
Pfeiffer syndrome causes, signs, symptoms, diagnosis & treatment
Pfeiffer syndrome causes, signs, symptoms, diagnosis & treatment
Nov 12, 2018
healthjade.com
During a prenatal ultrasound, Amanda's doctors discovered that her daughter, Emmy had some complications. Emmy's skull had begun to fuse together- a condition known as Craniostenosis. Shortly after Emmy was born, she was diagnosed with Pfeiffer syndrome. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ Emmy is now 5 months old, and brings so much joy to her family. Even though sweet Emmy may not look typical, she has had no neurological complications- she is right on par with typical babies her age. Listen to Amanda's
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879K views · 9.7K reactions | My hero  . . . . . #pfeiffersyndrome #craniosynostosis #craniowarrior #motherhood #picumom #craniofacial #specialneedsmom #medicalmom #specialneedsfamily #specialneedsparenting #instamom #nicu #nicumom | Raising Renners | Facebook
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