New podcast. New leadership. New chapter for AHC advocacy. 🎙️ Episode 1 with Simon Frost & Stephen Henderson drops soon! | Cure AHC
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After 14 episode free days, AHC has reared its ugly head. These type of episodes are scary. Vera has trouble swallowing, shallow breathing, full body paralysis along with very painful dystonia. We just hope & pray it’s short lived. | Victory for Vera
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⚠️ Viewer discretion advised – this footage shows Rupert during an episode. We record only a short amount of time as requested by medical professionals to show what happens, as AHC is so rare that many have never seen it before. Each episode can look different. Triggers can be things most of us take for granted, being too hot or too cold, hunger, over-excitement, tiredness, even water. Even common viruses can cause his condition to escalate and have previously led to him stopping breathing. In t
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