Rare Disease Day 💜🦋 Today, for us, it’s about Rett Syndrome. A rare genetic neurological disorder caused by a mutation on the MECP2 gene. It takes words, hand use, mobility — and replaces them with seizures, breathing struggles, and complex medical needs. It’s unpredictable. It’s lifelong. It’s invisible to many. Rare doesn’t mean small. It means underfunded, misunderstood, and often unseen. Hope is rare. And so is her strength. 💜🦋 #RareDiseaseDay #RettSyndrome #MECP2 #RareButStrong
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TikTokhope4hoperettwarrior
Rare Disease Day 💜🦋 Today, for us, it’s about Rett Syndrome. A rare genetic neurological disorder caused by a mutation on the MECP2 gene. It takes words, hand use, mobility — and
Hope4Hope(@hope4hoperettwarrior). original sound - Hope4Hope. Rare Disease Day 💜🦋 Today, for us, it’s about Rett Syndrome. A rare genetic neurological disorder caused by a mutation on the MECP2 gene. It takes words, hand use, mobility — and replaces them with seizures, breathing struggles, and complex medical needs. It’s ...
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RSRT is partnering with Profluent to bring AI to the fight against Rett syndrome. With a $1 million award from us, Profluent will apply AI to design next-gen gene editors that are smaller, smarter, and safer. A big step forward in our mission to cure Rett. 🔗 Read the story and watch the full video: https://reverserett.org/news/articles/profluent-rsrt-ai/ #ReverseRett #RettAI #RettSyndrome | Rett Syndrome Research Trust
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