Thirty million Americans have a rare disease. Two-thirds of those 30 million are children. There are more than 10,000 rare ...

The new CDC recommendation takes a much narrower view of the meningococcal disease threat. Because of "the low incidence ...

On Thursday, January 8, Quick and CNBC launched their new initiative, CNBC Cares, to help raise awareness for rare diseases and the families affected by them across the country. In a prerecorded ...

CNBC's 'Squawk Box' crew discuss the follow-up to the launch of CNBC Cures, a new initiative focusing on rare disease.

Lozano is a rare disease mom, neuroscience Ph.D. candidate at UC Davis, and board member for the PURA Syndrome Foundation. In May, a historic moment in science and medicine was captured in a single ...

When our son Peter was diagnosed with an ultra-rare form of muscular dystrophy at the age of 10, the first question we asked was: Is there a treatment? The answer was no. By the time our daughter ...

CNBC's Becky Quick opened up about her 9-year-old daughter Kaylie's battle with a rare genetic disorder called SYNGAP1 ...

Rare diseases are defined as conditions affecting fewer than 200,000 people in the US or less than 1 in 2,000 in Europe. 1-2 While each disease is individually rare, collectively, they represent a ...

BLUFFDALE, Utah ( ABC4) – A Bluffdale family has found a way to fund research to help cure a rare disease.

GeneDx announced a record-setting year for its research programs, reinforcing its position as the global leader in rare ...

Rebecca Quick, who is known as Becky Quick, has shared that her daughter Kaylie has a rare genetic disease. The CNBC anchor shared that, for the past 6.5 years, the family has kept Kaylie's condition ...

CNBC anchor Becky Quick is opening up about her daughter's once-private health battle.